Shinichi Wada, MD, MPH, PhD, Miki Hasegawa, MD
Jpn J Compr Rehabil Sci 10: 29-36, 2019
Objective: To create a model that makes it easier to
understand the “process of recovering self-leadership
(shutaisei),” which is linked to long-term improvement
in the lives of patients with disabilities due to acquired
brain injury.
Methods: We held the 18th Self-Leadership (Shutaisei)
Research Conference comprising eighteen members
that included patients, formal caregivers, medical
personnel, and researchers. Results of semi-structured
interviews with members related to “long-term recovery
of daily activities at home” and “self-leadership
(shutaisei)” in patients with disabilities due to acquired
brain injury were qualitatively analyzed using a
modified grounded theory approach.
Results: Forty-five concepts were generated after an
analytical review of the analysis worksheet. Five
recovery axes and five recovery stages emerged from
the concepts related to individuals’ progression
courses. The cognitive element of understanding one’s
self and one’s surroundings formed the base of the
model, supporting the three elements of self-leadership
(motivation, self-reliance, and confidence). It was
shown that increased self-esteem can be expected to
result from changes in personal values if selfleadership
is recovered.
Conclusion: The model is considered to be useful as it
is able to broadly assess the stages of patients with
acquired disabilities, to grasp their characteristics, and
to serve as a form of information that can be shared
with others.
Key words: self-leadership, stroke, traumatic brain injury, life-stage rehabilitation, in-home rehabilitation