Original Article

The long-term process of recovering self-leadership in patients with disabilities due to acquired brain injury

Shinichi Wada, MD, MPH, PhD, Miki Hasegawa, MD
Jpn J Compr Rehabil Sci 10: 29-36, 2019

Objective: To create a model that makes it easier to understand the gprocess of recovering self-leadership (shutaisei),h which is linked to long-term improvement in the lives of patients with disabilities due to acquired brain injury.
Methods: We held the 18th Self-Leadership (Shutaisei) Research Conference comprising eighteen members that included patients, formal caregivers, medical personnel, and researchers. Results of semi-structured interviews with members related to glong-term recovery of daily activities at homeh and gself-leadership (shutaisei)h in patients with disabilities due to acquired brain injury were qualitatively analyzed using a modified grounded theory approach.
Results: Forty-five concepts were generated after an analytical review of the analysis worksheet. Five recovery axes and five recovery stages emerged from the concepts related to individualsf progression courses. The cognitive element of understanding onefs self and onefs surroundings formed the base of the model, supporting the three elements of self-leadership (motivation, self-reliance, and confidence). It was shown that increased self-esteem can be expected to result from changes in personal values if selfleadership is recovered.
Conclusion: The model is considered to be useful as it is able to broadly assess the stages of patients with acquired disabilities, to grasp their characteristics, and to serve as a form of information that can be shared with others.

Key words: self-leadership, stroke, traumatic brain injury, life-stage rehabilitation, in-home rehabilitation

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