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  日本てんかん学会の電子メール情報配信
    ▲臨時配信011号▼     2009.2.20
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 ILAE Commission for paediatrics から、小児てんかん患者の診療を
小児科から成人の診療科へ移行することに関するアンケートが世界中を
対象に施行され、本学会にも依頼がありました。
小児科、および小児科のある施設が主な対象になると思いますが、会員
の皆様のご協力をよろしくお願い申し上げます。

 下記のアンケート部分だけをコピーして、すべての内容を記入の上、
アンケートの最後に記載されているように、Prof. Nordli 宛て、Email
<DNordliSchildrensmemorial.org>か、FAXでお送り下さい。メールの
表題は「Re: Questionnaire」 などご自由につけて下さい。

日本てんかん学会 資格審査・広報委員会
(配信についてのお問い合わせは、<jes-oasSumin.ac.jp>まで)

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<Transition Programs for Patients with Epilepsy>

Hospital:
City:
State/Country:
Patient Population: #1 Pediatric #2 Pediatric and Adult

At what age do you stop seeing pediatric patients? 
  _____years old

Does your hospital have a transitioning program for youth with special 
healthcare needs? 
#1 Hospitalwide #2 Some Specialty clinics #3 Epilepsy Clinic
If yes, is it: #1 Formal #2 Informal

What age do you think transition planning should begin?
#1 Under 12 years old #2 12-14 years old
#3 15-17 years old #4 18-20 years old
#5 After 20 years old

Do you have guidelines or materials for a transition program?
#1 Yes #2 No

What types of medical providers participate in the transition of your 
patients:
#1 Physician #2 Nurse/APN #3 Social Worker #4 Other:

Does your transition program focus on:
#1 Assistance with referral to specific family or internal medicine 
physician
s
#2 Assistance with referral to specific adult specialists
#3 Discussion of consent and confidentiality issues prior to age 18
#4 General adolescent health care needs
#5 Mental health care needs
#6 Assistance with program eligibility (ie SSI, vocational training, 
college)
#7 Assistance in creating a portable medical summary
#8 Education and consultative support to family or internal medicine 
physicia
ns
#9 Assistance with identifying insurance options after age 18
#10 Assistance in creating an individualized health care transition plan
#11 Provision of educational packet or handouts to adolescents/parents

When transferring care of a patient to an adult provider, does your medical 
team
#1 Send a written summary to the adult providers
#2 Make direct contact with the adult providers
#3 Develop tools to assist the adult providers
#4 Compile one written summary, including other 
subspecialists’information
#5 Other: _______________________________________________________

Which of the following are difficult for those participating in your 
transition 
program to obtain:
#1 Insurance
#2 Adult specialty provider
#3 Adult primary care provider

What would you identify as the three biggest barriers your hospital 
encounters 
when transitioning patients from pediatrics to the adult health care 
system? 
1:
2:
3:

What resources would help you better plan for the transition of your 
patients 
from pediatric to adult healthcare?



Would you be interested in joining a network of pediatric epilepsy center
’s 
transition programs? 
#1 Yes #2 No



Contact Information (optional)

Name:

Email: 


Please fax or email completed questionnaire to
Professor D Nordli (on behalf of the ILAE Commission for Paediatrics) 
Email: DNordliSchildrensmemorial.org
Fax: +1-773-868-8904

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以上。